Prayers for Gavin

As I write this post I think back over the last few weeks and those that we've lost to CF. We know that their battle on earth is done and the are now breathing free. Still the thought of this disease taking one more life is hard to continue to imagine. I find myself sometimes struggling to continue to find hope and catch myself in self pity. (Even though I am not personally going through it) And then I'm sent a special person to remind me that these wonderful people are sent into our lives for a reason. They are here to leave their marks on this world and footprints in our hearts.

When I visited another blog tonight they were asking for prayers for a little boy named Gavin. I went to the blog a started reading a few posts back. Before making it through the first post I was in tears. What an amazing little boy. What an amazing family. Gavin has touched the lives of so many, and soon we will be in peace.

This is a quote from the blog:

"Please pray that his passing will be beautiful and full of peace. He has done an amazing work here on Earth, touching the lives of countless people across the world.
It's now his turn to receive his reward -- peace.
Total peace."

Please visit Gavin's blog and remember this family in your thoughts and prayers. To the blogger that shared Gavin with me, Thank you. He's touched my heart.

Click HERE!

I have a lot to share and funny stories to post, but tonight should be for Gavin and his family! So I'll try to catch up tomorrow.

Peoples

A while back I introduced you all to Phoenix's amazing friend Heather! When I was struggling with Phoenix's diagnosis and what I could do to make a change, a ROAM mentioned doing a Poker Run for the CF Foundation! This is where the Fighting 4 Phoenix Poker Run got started. It came from the want and the drive to make a change.Heather does so much for others and is the last to complain about anything. She gives to others and worries about herself last.In February of 2009 Heather's world was changed. An active, on the go person received a very devastating diagnosis ALS. (Also known as Lou Gehrig's Disease)So Heather and her husband Travis grabbed life by the horns, and started to live each day to the fullest! The went on long motorcycle rides. They helped do fundraisers for others! But the most important thing is they stayed positive! They continued to fight for their love and for one another.Knowing what would eventually face them ahead they started to plan for what would need to be done, and one of the biggest chores was making the house wheel chair accessible. Let's just say a contractor took it upon themselves to lie and steal from them. Now they are out money and there is no wheel chair ramp built. To make a long story short and not get upset, I'm calling all Heather's Army members! E-mail or Facebook me and I'll give you the details!Click on the motorcycle to visit Heather's blog!

Prayers!

A few days ago I asked you to include Lauren, Brad, and their families in your prayers. Lauren is now breathing free. Please keep them all in your prayers as they continue on this journey. Thank you for being a part of our bloggy family Lauren. You helped me to see another side to CF for Phoenix.

We will continue the fight for a cure!

Hugs and Kisses from Phoenix!

Nuts??? Yes, Yes we are!

Let's just say things have been a little nuts around our house lately! I know most of you that know us are asking what's new? So let's just dive right in!

At the top you'll see a poll! I can't tell you what it's about just yet, but I need some help making up my mind. I have a huge decision to make that could change a lot of things. There are a lot of pros but also a couple of cons. So we are weighing them out as a family and I hope to have a choice soon! I figured since you guys have never steered me wrong before, I'd let you vote! What's your first thought, Yes or No! I hope to be able to tell you a final answer by Saturday!

The insurance company has decided to be every so wonderful yet again. They have now decided that there is not medical necessity for Phoenix's g-tube and does not want to cover any costs associated with it! HELLO!!! What child are they talking about. The same child that has been struggling with weight for several months now? So let the battle begin!

Miclan started selling girl scout cookies, she is so excited! One of the prizes is Miley Cyrus CD's. Let's just say that in her world this is the ultimate prize! She has since decided that between us and her grandparents she's a sure win. (I hate to tell her at $3.50 a box, that mom won't be purchasing several hundred as Miclan has planned! ☺) I know what a terrible mother! What's a few hundred dollars for a Miley Cyrus CD?

This time change has been horrible on the kids. As we are talking Emma is laying on the floor asleep! She informed me today, that if I would stop waking her up she wouldn't be so grouchy! Hello! What was I thinking? I tried explaining that becoming a mother doesn't come with a manual so she'd have to be sure and tell me these things! Which of course I'm sure she will continue to do!

I had a really cute video of the Phenny Man that won't load, so it'll have to wait till tonight. But here is the other one! Then our wonderful Phoenix decided to show his true colors! My thought if I can show you the cuteness I should always show you the other side!